Death of a director
Mrs. Danielle Frezza Wong Seen *
1945 – 2020
In Montreal, on July 18, 2020, at the age of 74, passed away Danielle Wong Seen, née Frezza.
It is with great sadness that we learned of the passing of Danielle Wong Seen. Danielle joined the Board of Directors of the Sjögren Syndrome Association on December 5, 2018. She will have marked us with her fair interventions, her conciliatory side and her desire to contribute to each of our efforts. During her medical consultations, despite the illness and her suffering, she wanted to inform the nursing staff about Sjögren’s syndrome, a very little known disease. His contribution to the mission of our organization will have been exceptional. It was a privilege to have met her. She will be missed.
The members of the Board of Directors, as well as the volunteers of the Sjögren Syndrome Association, wish to extend their sincere condolences to the whole family.
She is survived by her children, Fanny and Anthony (Catherine), as well as their father, Jacques. She will also be sadly missed by her two grandchildren, Victor and Aude, her sister Suzanne and her brother Nicolas (Ginette), her nieces Marie-Christine (Tony), Michèle, Mélissa, Emiko and Mariko, her nephew Michael, her beau -brother Pierre Wong as well as his wife Naomi, his companion and lover of the last 10 years, André Gervais, several cousins and many friends.
Danielle has worked in public relations all her life, working in the fields of politics and communications, among other things.
Her endearing personality and zest for life have allowed her to forge many links. She has always been a unifying figure, both generous and discreet. Empathetic, funny and deeply human, she leaves behind laughter and great memories. She will be sorely missed.
Lise St-André, president
Presentation of the board of directors 2020-2021
- Lise St-André, president
- Francine Laguë, vice-president
- Adrienne Hébert, secretary
- Claudette Hubert, treasurer
- Danielle Wong Seen, administrator *
- Pierrette Roy, administrator
- Ginette Fréchette, administrator
Welcome to the Sjögren’s Syndrome Association Website
The Sjögren’s Association is a Canadian registered, non-profit organization. We publish a Bilingual newsletter, the “Sjögren Bulletin” which is sent to our members and some medical professionals four times a year. In our newsletter you will find articles about Sjogren’s Syndrome, information about our association,helpful tips about caring for yourself and news about research.
You will find on this site a wide variety of links providing you with all relevant information to better understand Sjogren’s syndrome
We also organize support group meetings and information sessions for our members and their families and friends. These meetings are presently available in Montreal.
About Our Logo
This logo was chosen in 1994 by the Sjögren’s Syndrome group soon after it was formed in Montreal Quebec Canada. It was designed by one of our members.
Our logo is in the shape of an eye, one of the first problems associated with Sjögren’s Syndrome. Dry eyes are the most common symptom. The dove signifies peace, which everyone with a chronic illness actively seeks.
The heart represents passion and love. Many of us have difficulty coping with the health problems associated with Sjögren’s Syndrome. We reach out through the association to comfort and help others. The tear drop indicates moisture needed for the dry eyes and other parts of the body.