Board of Directors 2024-2025

Ms. Francine Laguë nº987

Ms. Pierrette Roy nº1000

Ms. Guylaine Alarie nº1048

Ms. Claudette Hubert nº988

Ms. Ginette Fréchette nº1036
Mr. Michel Bourassa nº 969
Ms. Lucie Poulin nº 997
Mr. Michel Bourassa nº 969
Ms. Lucie Poulin nº 997


As of August 1, 2022, every Tuesday and Thursday between 9:00 a.m. and 1:30 p.m., you can contact a member of our team directly by calling 877-934- 3666. You can contact us outside of these hours by leaving a message on voicemail or by email:

On December 16, 2021, we marked 25 years of the Sjögren Syndrome Association.

In addition, it is now possible to pay your membership by Interac e-Transfer. Contact us to obtain the necessary information. Payment by check is always accepted.

Following the pandemic, the support group meetings will be held virtually using the Zoom platform. Members interested in joining the meetings must register by email: or by telephone at the toll-free number: 877-934-3666.

During the Annual General Meeting of June 11, 2022, three new directors: Ms. Micheline Piché, Ms. Guylaine Alarie, Ms. Agnès Alarie joined the board of directors. We wish them the best Welcome. We thank Ms. Bernise Salter and Ms. Adrienne Hébert for their valuable involvement within the Sjögren Syndrome Association. We wish them good luck in their new projects.

We thank you for your support and look forward to meeting you.

Francine Laguë, president


Death of an administrator

Ms. Danielle Frezza Wong Seen *

1945 - 2020

In Montreal, on July 18, 2020, at the age of 74, passed away Danielle Wong Seen, née Frezza.< /em>

It is with great sadness that we learned of the passing of Danielle Wong Seen. Seeing one of our own leave is never easy. Danielle joined the board of directors of the Sjögren Syndrome Association on December 5, 2018. She left an impression on us with her fair interventions, her unifying side and her desire to make her contribution to each of our initiatives. During her medical consultations, despite the illness and her suffering, she wanted to inform the nursing staff about Sjögren's syndrome, a little-known disease. His contribution to the mission of our organization was exceptional. It was a privilege to have known her. We will miss her.

The members of the board of directors as well as the volunteers of the Sjögren Syndrome Association would like to offer their most sincere condolences to the family.

She leaves to mourn her children, Fanny and Anthony (Catherine), as well as their father, Jacques. She also leaves to mourn her two grandchildren, Victor and Aude, her sister Suzanne and her brother Nicolas (Ginette), her nieces Marie-Christine (Tony), Michèle, Mélissa, Emiko and Mariko, her nephew Michael, her beau -brother Pierre Wong as well as his wife Naomi, his companion and lover of the last 10 years, André Gervais, several cousins as well as many friends.

Danielle has worked in public relations all her life, working among others in the fields of politics and communications.

His endearing personality and his joie de vivre have allowed him to forge many connections. She has always been a unifying figure, both generous and discreet. Empathetic, funny and deeply human, she leaves behind laughter and excellent memories.

Lise St-André, president


Death of our former president

Ms. Lorraine Bilocq-Lebeau

1952 – 2020

At the St-Jean-sur-Richelieu palliative care residence, on July 12, 2020, at the age of 68, Mrs. Lorraine Bilocq-Lebeau passed away .

It is with deep sadness that we announce the death of Ms. Lorraine Bilocq-Lebeau. She leaves to mourn her husband Aimé Lebeau, her children Alexandre (Reine), Elisabeth (Jonathan) and RoseMarie (Jessy), her grandchildren Aminata (Émilie), Maxime and Philippe, her brothers and her sister, as well as several relatives. , friends and colleagues.

For over 20 years, she served on the board of directors of the Sjögren Syndrome Association, including the last 5 years as president. She was very concerned about this rare disease, which is still difficult to diagnose. A deeply committed woman, her contribution has been valuable and exceptional to the maintenance of the Sjögren Syndrome Association. She leveraged her sense of innovation and her ability to find solutions, all with a view to consistency in the decisions that were taken.

Lorraine Bilocq Lebeau was General Director of the Reference Center of Greater Montreal for 24 years. There she led the implementation and management of 24/7 telephone services serving all of Quebec, as well as the development of specialized dependency lines, the Reference-Aînés line and the launch of a TeleCounseling pilot project for excessive gamblers. It was under his leadership that the Center created the Directory of Self-Help Groups in Greater Montreal, published annually. His attachment to the Center and to those who worked there has never wavered. She was a member of the board of directors of the CRGM Foundation until the end of her life, always driven by her vision for the future of the Center. The Greater Montreal Reference Center has been the project of a lifetime.

Named Personality of the Week by La Presse in 1996, Ms. Lebeau also received the 2002 Leadership Award from the Canadian Society of Association Directors of Quebec. Member of several boards of directors in the socio-community sector of the Montreal region, Ms. Bilocq-Lebeau has training in social services and library technology.

The members of the board of directors as well as the volunteers of the Sjögren Syndrome Association would like to offer their most sincere condolences to the family. lorraine-bilocq-lebeau–3723

Lise St-André, president