Support and self-help groups offer members and their families the opportunity to meet people who are in a similar situation to theirs. These meetings allow participants to share their concerns, concerns and questions. It is also a place where tips, tricks and strategies are exchanged to understand and overcome the difficulties encountered.
Sjögren’s syndrome is slow-moving and can remain stable for many years, but it does alter the quality of life in the person’s daily life. It should be noted that a person with Sjögren does not usually have all the symptoms of the disease (but this is not excluded) : dry eyes, lack of saliva, dry skin, bronchial pain, joint and muscle pain, fatigue, etc., to name a few.
After the shock following the announcement of the chronic disease, it is necessary to acquire skills to reorganize one’s life with this health problem. It is first of all to understand one’s illness and to manage to talk about it to one’s entourage. At present, unfortunately there is no cure. However, it is possible to relieve symptoms and to try to prevent possible complications.
Taking care of yourself is one of the most important things to do following the announcement of the diagnosis. One way to do this is to create a circle of friends who know what you are going through and with whom you feel comfortable sharing your fears, frustrations and joys. These encounters will not only help you feel better, but also give you more energy and a more positive attitude that will help you better cope with the daily challenges of the disease. In addition, exercise has been shown to reduce inflammation, increase muscle strength and maintain the flexibility necessary for overall good health.
People of heart
Self-help groups, made up of volunteers, enable people with Sjögren’s syndrome to break their isolation, answer questions about illness and their well-being, and thus improve their quality of life.
You are warmly invited to all our activities.