Support and self-help groups
The reality is that Sjögren’s syndrome is very poorly known in the medical world and is difficult to diagnose. It is for this reason that the Association was set up to answer questions, to give information on the syndrome, to allow meetings between people with Alzheimer’s disease and their loved ones in order to calm their anxieties and to share certain strategies. adaptation.
Research has shown that people receiving support from a social network do better and feel more in control than those who are isolated. People who have been diagnosed with Sjögren’s Syndrome must learn to live with a chronic illness with the additional challenge of having a rare disease that most people have never heard of. Because of the rarity of the disease, it is sometimes difficult to find people who understand the pitfalls that a person with Sjögren’s syndrome encounters on a daily basis.
Want to know more about Sjogren’s syndrome? Do you feel isolated? Join the support and support groups of the Association: in addition to a warm welcome, we offer meetings with relevant content. Do not hesitate to contact us.
Conduct of the meeting
The meeting begins with a tour de table so that each person can express himself / herself if he / she wishes. The proposed theme can affect as much the diagnosis, the limitations that the syndrome causes, its impacts on the quality of life, the treatments, the medical follow-up, the daily adaptation with a problem of health which one did not expect and which makes us experience the jagged emotions, pain and fatigue management that social aspects often bring with Sjögren’s syndrome.
For more details, you can join a Sjögren Syndrome Association volunteer who will be happy to inform you:
Phone: 514-934-3666 / 1-877-934-3666