Board of Directors 2020-2021

  • Lise St-André, president
  • Francine Laguë, vice-president
  • Adrienne Hébert, secretary
  • Claudette Hubert, treasurer
  • Pierrette Roy, administrator
  • Ginette Fréchette, administrator
  • Bernise Salter, administrator



Starting August 18, every Tuesday and Thursday between 9:00 and 13:30, you can contact a member of our team directly by dialing 877-934-3666. You can communicate with us outside of these hours by leaving a message on the voicemail box or by email:

On December 16, 2021, we will mark 25 years of the Sjögren Syndrome Association. In order to celebrate this event, we are offering you the opportunity to join for a longer period with substantial discounts. We invite you to read the terms and conditions proposed on page 22 of the most recent Newsletter Vol. 26 nº2 Summer 2020.

In addition, it is now possible to pay for your membership by Interac Transfer. Contact us to obtain the necessary information. Payment by check is always accepted.

Given the delicate situation that we are experiencing and awaiting a vaccine, the meetings of the support group will be held virtually with the Zoom platform until the end of March 2021. The next virtual self-help group meeting will take place on Thursday, September 17 from 1:30 to 3 pm. Interested members should register by email at: or by phone at the toll free number: 877-934-3666.

At the Annual General Meeting of May 2, a new director, Ms. Ginette Fréchette, joined the board of directors. We welcome him. We would like to thank Ms. Danielle-Flore Soucy for her invaluable involvement in the Sjögren’s Syndrome Association. We wish him good luck in his new endeavors.

We thank you for your support and look forward to meeting you.

Lise et Francine, volunteers


Death of a director

Mrs. Danielle Frezza Wong Seen *

1945 – 2020

In Montreal, on July 18, 2020, at the age of 74, passed away Danielle Wong Seen, née Frezza.

It is with great sadness that we learned of the passing of Danielle Wong Seen. Danielle joined the Board of Directors of the Sjögren’s Syndrome Association on December 5, 2018. She will have marked us with her fair interventions, her conciliatory side and her desire to contribute to each of our efforts. During her medical consultations, despite the illness and her suffering, she wanted to inform the nursing staff about Sjögren’s syndrome, a very little known disease. His contribution to the mission of our organization will have been exceptional. It was a privilege to have met her. She will be missed.

The members of the Board of Directors, as well as the volunteers of the Sjögren’s Syndrome Association, wish to extend their sincere condolences to the whole family.

She is survived by her children, Fanny and Anthony (Catherine), as well as their father, Jacques. She will also be sadly missed by her two grandchildren, Victor and Aude, her sister Suzanne and her brother Nicolas (Ginette), her nieces Marie-Christine (Tony), Michèle, Mélissa, Emiko and Mariko, her nephew Michael, her beau -brother Pierre Wong as well as his wife Naomi, his companion and lover of the last 10 years, André Gervais, several cousins ​​and many friends.

Danielle has worked in public relations all her life, working in the fields of politics and communications, among other things.

Her endearing personality and zest for life have allowed her to forge many links. She has always been a unifying figure, both generous and discreet. Empathetic, funny and deeply human, she leaves behind laughter and great memories.

Lise St-André, president


Death of our former president

Mrs. Lorraine Bilocq Lebeau

1952 – 2020

At the St-Jean-sur-Richelieu Palliative Care Residence, on July 12, 2020, at the age of 68, passed away Mrs. Lorraine Bilocq-Lebeau.

It is with deep sadness that we announce the death of Mrs. Lorraine Bilocq-Lebeau. She is survived by her husband Aimé Lebeau, her children Alexandre (Queen), Elisabeth (Jonathan) and RoseMarie (Jessy), her grandchildren Aminata (Émilie), Maxime and Philippe, her brothers and her sister, as well as several parents, friends and colleagues.

For more than 20 years, she has served on the board of directors of the Sjögren’s Syndrome Association, the last 5 years as president. She was very concerned about this rare disease which is always difficult to diagnose. A deeply committed woman, her contribution has been invaluable and exceptional in maintaining the Sjögren’s Syndrome Association. She used her sense of innovation and her ability to find solutions, all for the sake of consistency through the decisions that were made.

Lorraine Bilocq Lebeau was General Director of the Reference Center of Greater Montreal for 24 years. There, she led the implementation and management of 24/7 telephone services that serve all of Quebec, as well as the development of specialized addiction lines, the Reference-Seniors line and the launch of a pilot TeleCounseling project for excessive gamblers. It was under his leadership that the Center created the Directory of Self-Help Groups in Greater Montreal, published annually. His attachment to the Center and to those who worked there has never wavered. She was a member of the board of directors of the CRGM Foundation until the end of her life, always driven by her vision for the future of the Center. The Reference Center of Greater Montreal was the project of a lifetime.

Named Personality of the Week by La Presse in 1996, Ms. Lebeau also received the 2002 Leadership Award from the Canadian Society of Association Directors of Quebec.Member of several boards of directors in the socio-community sector of the Montreal region, Ms. Bilocq-Lebeau has a background in social service and library technology.

The members of the board of directors as well as the volunteers of the Sjögren Syndrome Association wish to offer their sincere condolences to the family.–3723

Lise St-André, president